On a personal note, today marks 21 years since losing my mom to CJD.
At the time, I sounded the alarm about prion disese and the NPDPSC in Yahoo groups. Quickly got my hand slapped by them.
The Internet has changed a lot in 21 years. I cannot be censored now on Nostr, and you can imagine I did NOT go quietly from the discussion at the time.
I have, to this day, always done my part in trying to "solve" or "cure" the most insidous disease on this planet and I always will.
If I am ever "quiet" or even "silent" about prion disease in the US, it is NOT due to lack of activity or concern.
At some point, I chose to live my life. Normal. Boring. Drama-free.
If you would like to support the work that I have supported since 2012, here is the information.
The work of MedSchlr (nprofile…5qrc) by coachemma (nprofile…cqfc) and liminal 🦠 (nprofile…fhsu) is vital for our future.
*I will NOT be responding to ANY conspiracy theory comments. Thank you.*
https://memory.ucsf.edu/people/michael-geschwind
heatherlarson / MAKE SONGS LONGER
npub1nl…zf9d0
2025-11-10 18:54:05 UTC
Author Public Key
npub1nl8r463jkdtr0qu0k3dht03jt9t59cttk0j8gtxg9wea2russlnq2zf9d0Seen on
wss://nos.lolPublished at
2025-11-10 18:54:05 UTCEvent JSON
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